Patient stories of primary biliary cholangitis (PBC) can help people understand the challenges of living with this chronic autoimmune liver disease.
“Be unwavering in your commitment to advocate for yourself.” L. Marie, community leader and patient advocate, during a SHE Media panel at SXSW in Austin, Texas.
Learn more about L. Marie’s experience with a rare liver disease and her advice to others: https://www.ipsen.com/us/
The best advocate for your care is YOU, but it can be overwhelming to navigate an increasingly complex medical infrastructure and sift through the volume of information (good and bad) available online. Women can also feel overlooked by their doctors or like their doctor is not asking the right questions. A PBC patient advocate shared how you can become an informed patient and how you can equip yourself to be a partner to your doctor at SXSW, in Austin, TX.
Speakers:
• L. Marie Asad, Advocate for women’s health, living with PBC
• Danielle Dray, Board Certified OB/GYN, Senior Medical Director, Medical Affairs at Ipsen
• Tamsen Fadal, Award-winning journalist, author & menopause advocate
Moderator: Dr. Jessica Shepherd, Gynecologist/ CEO, Sanctum Med+Wellness; CMO, Verywell Health, Modern Meno Founder, & Flow Space Advisor