about us
Friends of the PBC Foundation: A Revolutionary Force in PBC Education & Advocacy
The Friends of the Foundation, NFP is emerging as a transformative organization dedicated to serving those affected by Primary Biliary Cholangitis (PBC) in the United States. The National Institutes of Health reports that there’s an estimated 50,000-100,000 people in the United States that have Primary Biliary Cholangitis (PBC).
Inspired by the UK’s PBC Foundation, we aim to address the growing challenges and unmet needs within the PBC community, filling a critical void by providing specialized support, education, and advocacy for U.S. patients.
What Is PBC?
Primary Biliary Cholangitis (PBC) is a rare, chronic, autoimmune liver disease. It can significantly impact a person’s quality of life and, if untreated, can result in liver failure or premature death.
A Diagnose Is Essential
A rapid and precise diagnosis is essential to determine the appropriate treatment. As PBC is a rare autoimmune liver disease, it is important that PBC is monitored by hepatologists (experts in diseases of the liver).
Your Case and Treatment
Your doctor will examine your case and prescribe you the treatment(s) that are needed, also according to your response to the treatment(s) as measured by blood tests. In addition, he/she will assess possible problems which may occur during the course of the disease, including other conditions related to PBC.
Services Available
Join The PBC Foundation today and you'll receive full access to all patient services, exclusive content, and the Bear Facts magazine.
REGISTERING WITH THE PBC FOUNDATION IS FREE FOR ALL
BE PART OF A SUPPORTIVE COMMUNITY & MEET OTHERS AFFECTED BY PBC
ENJOY EXCLUSVE CONTENT & EVENTS
RECEIVE OUR QUARTERLY PBC MAGAZINE, THE BEAR FACTS
ACCESS OUR SELF CARE APP PACKED WITH TOOLS & INFORMATION
HAVE OUR SAY, SHAPE OUR WORK, & INFLUENCE THE FUTURE OF PBC
Join us every 3rd Friday of each month!
For more than a year, the Friends of the PBC Foundation volunteers have led the PBC Foundation monthly support group. Please join us the 3rd Friday of each month (February 21, 2025) at 12pm CST virtually.
Register with the PBC Foundation here: https://www.pbcfoundation.org.
Log-in required to access event details.
All Are Welcome to our meetings which are a social event where you can meet other people affected by #PrimaryBiliaryCholangitis (PBC). You will have the opportunity to discuss PBC with other patients (and their families!), often sharing important hints and useful information.
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