Rare Disease Day

Rare Disease Day 2025 will be hosted by the U.S. Food and Drug Administration and National Institutes of Health (NIH) on Thursday, February 27th-28th. I’m excited to be joining hundreds of rare disease patient advocates in Bethesda, Maryland providing patient resources and promoting #PBCawareness. 

 

The meeting will take place online (virtually) and in-person in Bethesda, Maryland, on the NIH campus in the Natcher Conference Center. 

 

Registration is required for in-person and virtual attendees here: https://www.fda.gov/news-events/fda-meetings-conferences-and-workshops/fda-nih-rare-disease-day-02272025?fbclid=IwY2xjawIVkFZleHRuA2FlbQIxMQABHTFg2RiotWh5z8RvdgxuBteFGyEvUd0tGCMRGEegp9Yeth3TZ3jKQBv44Q_aem_g62VHl2VgmqGeOH8kwEWlA