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PBC Awareness: A Revolutionary Force in PBC Education & Advocacy

PBC Awareness NFP, is an independent, founder-led and board-governed nonprofit dedicated to elevating patient voice, advancing education, and expanding national awareness of Primary Biliary Cholangitis (PBC).
 
This evolution reflects a thoughtful governance process and our strategic commitment to building a sustainable organization grounded in advocacy, collaboration, and health equity. Our new identity better aligns with the scope of our work supporting patients, caregivers, clinicians, and cross-sector partners working to improve outcomes for people living with PBC and other cholestatic liver diseases.
 
The mission of the PBC Awareness, NFP is to promote collaboration between academic and community stakeholders and bring awareness of primary biliary cholangitis through community capacity building, participatory research, advocacy and innovation.

What Is PBC?

Primary Biliary Cholangitis (PBC) is a rare, chronic, autoimmune liver disease. It can significantly impact a person’s quality of life and, if untreated, can result in liver failure or premature death.

A Diagnose Is Essential

A rapid and precise diagnosis is essential to determine the appropriate treatment. As PBC is a rare autoimmune liver disease, it is important that PBC is monitored by hepatologists (experts in diseases of the liver).

Your Case and Treatment

Your doctor will examine your case and prescribe you the treatment(s) that are needed, also according to your response to the treatment(s) as measured by blood tests. In addition, he/she will assess possible problems which may occur during the course of the disease, including other conditions related to PBC.

YOU ARE NOT ALONE

Every September, PBC Awareness Month shines a light on Primary Biliary Cholangitis—a chronic, progressive autoimmune liver disease that silently affects thousands worldwide, often going undiagnosed until significant liver damage has occurred. Through social media campaigns, educational webinars, community walks, and landmark events like PBC Awareness Day, our organization works to amplify patient voices, share critical information about symptoms and treatment options, and advocate for earlier diagnosis and research funding. But this mission cannot succeed without you. We are issuing an open call for volunteers—whether you are a patient navigating your own journey, a caregiver who understands the daily realities of this disease, a medical professional with expertise to share, or an ally passionate about making a difference. There is a place for you in this movement. Whether you can offer an hour a month or lead a local initiative, your time and talent will help us reach more people, support more families, and move one step closer to a cure. Join us—because awareness saves lives, and together, we are stronger.

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